CKB Privacy Policy

About this policy

This policy explains what types of personal information will be gathered when you visit the China Kadoorie Biobank website www.ckbiobank.org and how this information will be used. Please note that this policy applies to the China Kadoorie Biobank’s main web pages (i.e. those in www.ckbiobank.org). The policy is based on that adopted by the University of Oxford (see http://www.admin.ox.ac.uk/councilsec/compliance/dataprotection/privacypolicy/)

If you follow a link to any other website, please check their policies before you submit any personal information to those websites.

Information collected

The CKB Data Access System requires the provision of personal and project information in order to verify an individual’s status as a bona fide researcher and review the data request. The CKB may store this information manually or electronically. By supplying this information you are consenting to the CKB holding and using it for the purposes for which it was provided. Information provided will be kept for as long as is necessary to fulfil that purpose.

We may also collect information about your computer system, including where available your IP address, for system administration and to report aggregate information to our webmasters. This is statistical data about our users' browsing actions and patterns which does not identify any individual and allows us to ensure that content from our site is presented in the most effective manner for you and for your computer.

How the information collected is used

Personal information provided to the CKB by you will only be used for the purposes stated when the information is requested. Personal information will not be shared with third parties, or provided to direct marketing companies or other such organisations without your permission. Personal information collected and/or processed by the CKB is held in accordance with the provisions of the Data Protection Act 1998.

In reviewing Applications, CKB may need to disclose Applicants’ personal data to the CKB Study Team, Access Committee, International Scientific Advisory Board and/or others (as it deems reasonably necessary).

CKB seeks to keep the wider public informed of research findings deriving from access to the Resource. For this reason, unless agreed otherwise, details of approved Research Projects identifying the Principal Investigator will be made available on the CKB website. Periodic updates of research that has been conducted, and publications that derive from use of the Resource, will be linked to the CKB’s website.

CKB may contact Registered Researchers by e-mail and/or by post, with updates on the Resource including the availability of new datasets.

From time to time, CKB may seek views from Applicants concerning the access procedures that are in place. Responses to such enquiries will be voluntary and any feedback used solely for evaluation purposes.

Demographical and statistical information about user behaviour may be collected and used to analyse the popularity and effectiveness of the CKB website. Any disclosure of this information will be in aggregate form and will not identify individual users.

How we store information collected

Information which you provide to us will ordinarily be stored on our secure servers. In reviewing Applications CKB may need to disclose Applicants’ personal data to reviewers based outside the European Economic Area ("EEA"). Accordingly, information that we collect from you may be processed outside the EEA. By submitting personal information, you agree to this transfer, storing and processing. We will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this Privacy Policy.

We may disclose your personal information to third parties if we are under a duty to disclose or share such information in order to comply with any legal obligation or to protect the rights, property or safety of the University, its members or others.

Use of “cookies”

A cookie is a small file of letters and numbers that can be placed on your computer or mobile device allowing website providers to distinguish you from other users. The current CKB website does not use cookies for collecting user information.

Access to information

The Data Protection Act 1998 gives you the right to access information held about you. For further information about this right and how to exercise it, please see the University’s Policy on Data Protection. The Freedom of Information Act 2000 provides a right of access to information held by public authorities and sets out exemptions to that right of access. For further information see the University’s Freedom of Information statement http://www.admin.ox.ac.uk/councilsec/compliance/foi/.

Changes to our Privacy Policy

Any changes we may make to our Privacy Policy in the future will be posted on this page and, where appropriate, notified to you by email.

Contact

Any queries or concerns about privacy on this website should be sent by email to ckdaccess@ndph.ox.ac.uk